Wednesday, June 28, 2006
flux capacitor.... fluxing
Hey there, sorry (even though you’re NEVER supposed to apologize for not globbing, but I’ll break precedent) for my prolonged absence from this here space. All is well, the little girl is doing fantabulous, she’s got a pediatrician appointment tomorrow at which point we’ll see if her fantabulousness is continuing at its current pace, which of course it naturally of course most definitely is in regards to her incredible essence as this beautiful little being, now the hope is that the health front will keep up with the magical essence side of the coin, and at this point, well, it is.
Wellie now, here it is a day or two later after I wrote the above. So. The kid is doing great. We took her into the pediatrician yesterday, and her thyroid is looking A-OK, her platelette count is up in normal range, the only thing really is that her muscle tone is a bit on the low side, but I swear she’s getting stronger every day. It is truly amazing, every day the kid looks more like a kid, you know what I mean? She’s still a baby, obviously (1 month tomorrow) but I hold her and look down into her little eyes and there’s more and more awareness & more & more distinction and it’s like, wow, I’ve got a little daughter here, she’s really starting to take note of what the world’s all about. Hope she likes what she sees.
The visit from my folks was great. My sister came out as well. A good time was had by all. They all fell instantly in love with the little one of course, and everyone cooed and oohed and aahed and squeezed and pinched and kissed, etc. We’re still on the chicken little side of the equation and have not told them about the DS. The rationale, which I think I mentioned in an earlier post, was to let them soak in and fall in love with the baby without any prejudice or preconceived notions, just grandparents and auntie meeting baby. And it went swimmingly, so much so that it’s scary to do anything to break the magic bubble, har har.
I’m getting ready to make the call though. Tell my folks the real deal lennox lewis. Was going to do it this week and drop the news on them but they’re leaving on a month long trip to the east coast and Europe in a couple days and it just didn’t seem fair to tell them right before that. One more month won’t a giant difference make. Let them enjoy their trip and I’ll tell them when they get back. I promise, yes, I will tell them when they get back. It will be a relief. I swear on the ancient moonstone of Babylon.
It’s funny, because to us, it’s just not a big deal any more. She’s doing so well, she’s just like any other kid, to us at least, so I find myself forgetting that she’s even got “it.” I know it’s unfair, though, to both my family and her, to wait too long, because I don’t want sneaking suspicions to grow over time or uncomfortable situations or yadda yadda yadda what have you. Get it over and done with I will, yoda said.
Anyway, besides that little bit of background drama, all is well. The little one is feeding like a champ, drinking more every day, we put her down for her “tummy time” a few times every day, which sometimes she loves and sometimes she hates. She was especially angry at us last night after an extended tummy session during which she screamed and cried, but hey kiddo, them’s the breaks. It ain’t all flowers and bunny rabbits, no pain no gain. She’s a tough kid, though, she made it this far, and she’s kicking ass, taking names, and I have every optimism that that trend will continue.
Hope all is well for you all. Aloooohaaa.
Wednesday, June 14, 2006
hello, I have not written here for quite some time. The baby is doing fine, better than fine actually. Very very healthy, we are very very blessed. Above is a picture of her just one or two days old, when we were still at the hospital. She's a little over 2 weeks now.
Thyroid test came back today with the all clear. Heart is perfectly normal and healthy. Blood platelette count was down a bit last week but now within normal range. Some jaundice in the week after birth but that’s been cleared up. Aside from the jaundice and the platelette count, both resolved, and both apparently not linked in any higher rate of occurrence to down syndrome, we have had virtually no signs of any health problems, despite quite thorough checkups and monitoring. our pediatrician has been ON IT, and we were happy to hear the easter seals people (see below) sing her praises as well.
Seeing as to the fantastic health we have not yet started nutrivene, pediatrician took a look at the bottle but said to hold off, that most of that stuff is in mom’s prenatal vitamin. I looked and there’s way more stuff in the nutrivene, but does a baby that for all intents and purposes seems to be doing absolutely fabulously need those extras? Is mother nature of the third chromosome exerting a hold toward something unforeseen? We shall live & we shall learn. As shall she.
Are we crazy? We still have not told anyone (besides, obviously, health professionals) about the Down Syndrome. The few people that have visited the baby have exhibited no suspicions, whether or not they have any? She seems like any other little baby to us, but we are first time parents, so who knoew? We were kind of tripping out, she doesn’t have the one line across her hands that is common with the DS, but the “M” like mom & dad. Interesting…. We find ourselves wondering, "does she really have it?" but the results of the amnio were crystal clear. three very distinct squigglies on numero 21. Things will likely manifest themselves later? Or not? But, hey, why paint the little one in a corner, as long as we are getting good medical care & they are aware, and we are taking advantage of services for her (already had a visit from easter seals and they’re working up her OT and PT program).
My parents and sister land tomorrow for a meet & greet with the new addition. I am sure the little one will charm the pants off one and all.
What else? As said, we are very blessed, very busy, and very happy. hope all is well for all of you and your respective bundles of respective joy, as well as any other entities important to you. salud and selah.
Tuesday, June 06, 2006
first the kierkegaardian version
pics & more info to come.