Tuesday, March 14, 2006

 

Howdy

Well, wood knocking notwithstanding, we got a little scare at the last doctor visit. They saw something they were a little suspicious of in our little girl’s heart, and while even if it is something to be concerned about, it is still very minor, but it will still potentially require surgery, which is of course scary. Something about the line being too straight which separates the heart chambers. All the blood appears to be flowing properly through and in between the various areas, but, to be safe, we’re seeing a heart specialist in a couple days, so I guess we’ll know more then. It’s funny, (well, maybe not very) but you get yourself into the mode of thinking that everything’s fine, that your baby is just that, a baby, a normal little baby, and then they’re talking about heart surgery, minor as it is, but is there such a thing as minor, routine heart surgery? I guess there is, but, well, you prolly know what I mean. Or not.

One cool thing we did get from the visit was a beautiful 4D image of our baby girl, which we have framed in our bedroom. Her little head and her little fingers in her little mouth. During the 4D scan, which is like a sonogram but with another dimension (time), with incredibly vivid pictures, almost like a brown & white video playing, we saw her looking at us, sucking her thumb, moving around, the whole nine yards.

Anyway, just wanted to drop a little update as to what was going on. We’re keeping strong. Still haven’t told anyone about the situation. We’re gonna tackle that later this month. I have got to start working on writing up a letter we’ll send out to everyone in the family, giving the news in as gentle way as possible, with as much positive information that at the same time doesn’t overwhelm. There is so much about Down Syndrome, as I have obviously discovered, that is just not understood by the general population, and I guess that we have to let our families go through the process of coming to understand that, as we have. Not that it makes it any easier. Part of me wishes we’d told everyone right from the start, but it was hard enough to get through at the time without dealing with that aspect of it as well. I’m glad, actually, that we did it this way. Everyone has an attachment. Everyone is geared up to love this beautiful little girl that wants to be in this world so badly. If this bit of information changes that for anyone, well, that’s just their loss. I don’t think it will, but, hey, people are people, and they consistently surprise you as we wander through this phenomenon of life, in good ways & bad.

Hope all is well for everyone reading this, and I’ll try to drop another line or two sooner rather than later.

Comments:
I would love to see your little princess photo on your blog (hint, hint-smile)
 
I love those 4D ultrasounds, aren't they just amazing. I'd also love to see the picture ;-)

We found out Callum's diagnosis post natally, we held off telling the majority of people until the karotype test came back even though we were pretty sure that the initial diagnosis was correct. We wanted everyone to just be happy that our beautiful boy had been born.

Looking forward to more updates.
 
Hello and congrats on the upcoming birth of your daughter! I have a 2.5 yr old daughter w/Ds. One of the best things I've learned on this journey is that she really is just like her peers...I was so scared of how things would be (and still am sometimes) but we're raising her just as we would have if she didn't have an extra chromosome. She's a child first and it helps to remember that :) Would also like to see your 4D u/s photo - we had one of those as well and it was awsome to watch! Will be checking in on your blog and waiting to welcome your daughter into this world! Another thing - I think your approach to telling everyone about the diagnosis is great - it gives you guys time to digest and accept the news first and then be able to share what you've learned with everyone.
 
thanks for all the support, everybody.

your wish is my command (see post above)
 
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