Tuesday, January 31, 2006
i don't need no steenkin title
howdy there. well, yup, still here, didn't go anywhere, well, actually, i did, we did, we went on vacation, a short one, a close one, just a lil getaway, we shot out to kauai for a long weekend, was very nice, gracias, although the wife got sick, and we were freaking out cuz she was running a fever when we got back, went to the emergency room, everything was ok, she's just 'bout round the bend i think, fever broke, still nursing a cold, baby's fine, wife's fine, thx for asking, even though you didn't ask.
well, look at me, second paragraph and i haven't even mentioned down syndrome yet. voila. it feels more normal and not something to trip about every day and the baby's not even born yet. not to say we're through the woods, these woods is deep, there's lions tigers a bear and plenty of "oh my's" lurking methinks, and we still get moments of apprehension, fear, etc., but we're dealing, we is strong, methinks? oh well, strong enuff...
one thing we're still working on is when/how to tell our families. we found out about the DS right after finding out she's a girl, so we haven't told anyone either bit of info. i think we're gonna let everyone know that she's a girl first, and then lay the info in ref: the DS at a later date. i just don't want people to judge her, my little girl, without first setting an image in their mind, of their granddaughter, their niece, their cousin, etc., get some emotional attachment, then maybe they'll be better equipped to digest the news that this child coming into all our lives will be quote unquote "special."
yadda yadda yadda. anyway, just wanted to let that one person that doesn't exist that's reading this that things are good, and we're hanging in there. actually, i just wanted to type a bunch of stuff and see it on the screen and empty out my head for the nonce. i think that's it for now. it's interesting, this feeling, of being able to type whatever i want, of letting loose, worries, fears, exacerbations (huh?) but i do, yes, think that's it for now, i know, i thought i had more knowledge as well. be safe, kids.
well, look at me, second paragraph and i haven't even mentioned down syndrome yet. voila. it feels more normal and not something to trip about every day and the baby's not even born yet. not to say we're through the woods, these woods is deep, there's lions tigers a bear and plenty of "oh my's" lurking methinks, and we still get moments of apprehension, fear, etc., but we're dealing, we is strong, methinks? oh well, strong enuff...
one thing we're still working on is when/how to tell our families. we found out about the DS right after finding out she's a girl, so we haven't told anyone either bit of info. i think we're gonna let everyone know that she's a girl first, and then lay the info in ref: the DS at a later date. i just don't want people to judge her, my little girl, without first setting an image in their mind, of their granddaughter, their niece, their cousin, etc., get some emotional attachment, then maybe they'll be better equipped to digest the news that this child coming into all our lives will be quote unquote "special."
yadda yadda yadda. anyway, just wanted to let that one person that doesn't exist that's reading this that things are good, and we're hanging in there. actually, i just wanted to type a bunch of stuff and see it on the screen and empty out my head for the nonce. i think that's it for now. it's interesting, this feeling, of being able to type whatever i want, of letting loose, worries, fears, exacerbations (huh?) but i do, yes, think that's it for now, i know, i thought i had more knowledge as well. be safe, kids.
# posted by joe malone @ 1:38 PM 
Comments:
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Hi Joe,
First and foremost you are going to have a daughter - congratualations.
As the father of a beautiful girl who will be turning 8 in a couple of weeks, and who happens to have DS, I just want to say I have the greatest of respect for you and your wife for deciding to keep your child.
The biggest problem that most people have when they first encounter anyone with DS is that they think of the DS and forget the person that is there.
The truth is that you are going to have a daughter, a baby that will need love, care and attention. And as she grows you will encounter all sorts of problems, some you were prepared for, most you were not - as you would for absolutely any child you have
Sure she will have "special needs", but then my 10 year old son, who does not have DS has needs that are special and unique to him.
As a parent of a daughter that you will love, and who will love you, you will do your best for her, no matter what her needs are. And in return, she will love you, annoy you, frighten you, make you laugh, make you angry, make you giggle, make you cry, and fill you with pride.
On my own blog http://kimayres.blogspot.com/, if you look down the sidebar on the right, you'll find a few blog entries that are about being a father of a child with DS.
If there are things you'd like to discuss, or questions you'd like to ask, then don't hesitate.
Whether the words of a stranger many miles away can mean anything to you or not, my thoughts are with you and your wife.
First and foremost you are going to have a daughter - congratualations.
As the father of a beautiful girl who will be turning 8 in a couple of weeks, and who happens to have DS, I just want to say I have the greatest of respect for you and your wife for deciding to keep your child.
The biggest problem that most people have when they first encounter anyone with DS is that they think of the DS and forget the person that is there.
The truth is that you are going to have a daughter, a baby that will need love, care and attention. And as she grows you will encounter all sorts of problems, some you were prepared for, most you were not - as you would for absolutely any child you have
Sure she will have "special needs", but then my 10 year old son, who does not have DS has needs that are special and unique to him.
As a parent of a daughter that you will love, and who will love you, you will do your best for her, no matter what her needs are. And in return, she will love you, annoy you, frighten you, make you laugh, make you angry, make you giggle, make you cry, and fill you with pride.
On my own blog http://kimayres.blogspot.com/, if you look down the sidebar on the right, you'll find a few blog entries that are about being a father of a child with DS.
If there are things you'd like to discuss, or questions you'd like to ask, then don't hesitate.
Whether the words of a stranger many miles away can mean anything to you or not, my thoughts are with you and your wife.
Hello Joe,
I am an avid reader of bstrong and kim and I can tell you that they are wonderful fathers. I too have a child with DS, she is 19 months old.
I think your approach to this blog is rather unique-and I have added you to my list of active blogs I frequent.
Please feel free to check out my blog anytime... p.s. there are plenty of other links to DS blogs and websited you can check out as well-if you want.
Glad our paths crossed, hope to hear more about your family soon.
I am an avid reader of bstrong and kim and I can tell you that they are wonderful fathers. I too have a child with DS, she is 19 months old.
I think your approach to this blog is rather unique-and I have added you to my list of active blogs I frequent.
Please feel free to check out my blog anytime... p.s. there are plenty of other links to DS blogs and websited you can check out as well-if you want.
Glad our paths crossed, hope to hear more about your family soon.
# posted by 
: 9:18 AM
: 9:18 AM
One word, Congratulations!
Ok, those that "know" me know I don't end with one word, just ask BigDawg.
Will be checking back on you, your road less traveled, and be there for your questions. See, we are on the service road right now, heading to the highway. Nash, our son with Down syndrome, will be 5 next week. Light of our life.
Check out www.dadsappreciatingdownsyndrome.org
wonderful men, fathers and their chapters are spreading nation wide.
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Ok, those that "know" me know I don't end with one word, just ask BigDawg.
Will be checking back on you, your road less traveled, and be there for your questions. See, we are on the service road right now, heading to the highway. Nash, our son with Down syndrome, will be 5 next week. Light of our life.
Check out www.dadsappreciatingdownsyndrome.org
wonderful men, fathers and their chapters are spreading nation wide.
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